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NEUROLOGY 2005;64:137-138
© 2005 American Academy of Neurology
Brief Communications

Grief support for informal caregivers of patients with ALS: A national survey

R. S. Hebert, MD, MPH, D. Lacomis, MD, C. Easter, BA, V. Frick, RN and M. K. Shear, MD

From the Division of General Internal Medicine, Section of Palliative Care and Medical Ethics (Dr. Hebert) and Department of Neurology (Dr. Lacomis), University of Pittsburgh School of Medicine, PA; Amyotrophic Lateral Sclerosis Association of the District of Columbia/Maryland/Virginia Chapter (C. Easter), Washington, DC; Amyotrophic Lateral Sclerosis Association of Western Pennsylvania Chapter (V. Frick), Pittsburgh, PA; and Department of Psychiatry (Dr. Shear), Western Psychiatric Institute and Clinic, University of Pittsburgh, PA.

Address correspondence and reprint requests to Dr. Randy Hebert, Division of General Medicine, Section of Palliative Care and Medical Ethics, MUH 933 W, 200 Lothrop Street, Pittsburgh, PA 15213; e-mail: hebertrs{at}msx.upmc.edu

Providing emotional support to caregivers is integral to comprehensive ALS care. The authors surveyed ALS Association centers and clinics and Muscular Dystrophy Association/ALS centers. Respondents thought that grief and bereavement support was integral to ALS care but thought that the support provided by their centers was often inadequate.

Received February 24, 2004. Accepted in final form August 16, 2004.

Additional material related to this article can be found on the Neurology Web site. Go to www.neurology.org and scroll down the Table of Contents for the January 11 issue to find the title link for this article.






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