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NEUROLOGY 2005;64:1780-1782
© 2005 American Academy of Neurology
Brief Communications

Caregiver burden and patients’ perception of being a burden in ALS

A. Chiò, MD, A. Gauthier, PsyD, A. Calvo, MD, P. Ghiglione, MD and R. Mutani, MD

From the Department of Neuroscience (Drs. A. Chiò, A. Gauthier, A. Calvo, A. Ghiglione, and R. Mutani), University of Turin, and IRCCS Istituto Auxologico Italiano (Dr. R. Mutani), Piancavallo, Italy.

Address correspondence and reprint requests to Dr. A. Chiò, Department of Neuroscience, Via Cherasco 15, 10126 Torino, Italy; e-mail: achio{at}usa.net

The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients’ disability. ALS patients have a good objective perception of their impact on caregivers.

Received October 19, 2004. Accepted in final form February 4, 2005.




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