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NEUROLOGY 2006;67:488-490
© 2006 American Academy of Neurology
Brief Communications

When do patients with Parkinson disease disclose their diagnosis?

S. Haines, MD, H. Chen, PhD, K. E. Anderson, MD, P. S. Fishman, MD, PhD, L. M. Shulman, MD, W. J. Weiner, MD and S. G. Reich, MD

From the Departments of Neurology (S.H., P.S.F., L.M.S., W.J.W., S.G.R.), Epidemiology & Biostatistics (H.C.), and Psychiatry (K.E.A.), University of Maryland School of Medicine, Baltimore, MD.

Address correspondence and reprint requests to Dr. Stephen G. Reich, University of Maryland School of Medicine, 22 S. Greene Street, N4W46, Baltimore, MD 21201; e-mail: sreich{at}som.umaryland.edu

The authors surveyed 101 patients with Parkinson disease (PD) about their experiences disclosing the diagnosis. Ninety percent disclosed early to family; more than 25% waited at least 1 year to disclose at work. The main concerns about disclosure were fear of reflecting negatively on themselves and fear of upsetting others. Patients who delayed disclosure were more likely male, younger, and employed. There is considerable variability among patients with PD in the time to disclose their diagnosis.

Additional material related to this article can be found on the Neurology Web site. Go to www.neurology.org and scroll down the Table of Contents for the August 8 issue to find the link for this article.

Supported in part by the University of Maryland GCRC (M01-RR-16500).

Disclosure: The authors report no conflicts of interest.

Received September 9, 2005. Accepted in final form March 27, 2006.






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