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Abstract

Objective:

To better define the pathophysiologic mechanisms underlying the development of the novel facial-onset sensory and motor neuronopathy (FOSMN) syndrome and, in particular, to determine whether neurodegenerative processes, mediated by excitotoxicity, or autoimmune mechanisms contribute to the development of FOSMN syndrome.

Methods:

Clinical, laboratory, neurophysiologic, and pathologic assessments were undertaken for 5 patients with FOSMN syndrome (3 male and 2 female), the largest cohort of FOSMN syndrome reported to date. In addition to conventional neurophysiologic studies, novel threshold tracking transcranial magnetic stimulation (TMS) techniques were undertaken to assess for the presence of cortical excitability.

Results:

Clinically, all patients exhibited the typical FOSMN syndrome phenotype, heralded by facial-onset sensory deficits with subsequent development of motor deficits evolving in a rostral-caudal direction. Pathologic studies, including an autopsy, disclosed widespread degeneration of sensory and motor neurons with no evidence of inflammation, amyloid deposition, or intraneuronal inclusions, such as TDP-43, Bunina bodies, or ubiquitin inclusions. Conventional neurophysiologic studies revealed abnormalities of blink reflexes, along with features of motor and sensory neuronopathy. Threshold tracking TMS disclosed normal cortical excitability in patients with FOSMN syndrome, with preserved short-interval intracortical inhibition, resting motor threshold, motor evoked potential amplitude, and cortical silent period duration. Patients with FOSMN syndrome failed to respond to immunomodulatory approaches.

Conclusions:

Findings from the present study suggest that FOSMN syndrome is a primary neurodegenerative disorder of sensory and motor neurons, with distinct pathophysiologic mechanisms. Neurology® 2012;79:73–79

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Information & Authors

Information

Published In

Neurology®
Volume 79Number 1July 3, 2012
Pages: 73-79
PubMed: 22722633

Publication History

Received: October 24, 2011
Accepted: February 23, 2012
Published online: June 20, 2012
Published in print: July 3, 2012

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Disclosure

S. Vucic is a member of the scientific boards for Merck Serono Australia, Novartis, and Bayer Schering and serves as a medical consultant for Merck Serotures from sanofi-aventis. T. Stein reports no disclosures relevant to the manuscript. E.T. Hedley-Whyte reports no disclosures relevant to the manuscript. S. Reddel reports receiving grants and honoraria for lectures by Bayer Schering. S. Tisch, K. Kotschet, and D. Cros report no disclosures relevant to the manuscript. M. Kiernan reports that he is the Editor-in-Chief of the Journal of Neurology, Neurosurgery and Psychiatry (BMJ Group). Go to Neurology.org for full disclosures.

Authors

Affiliations & Disclosures

Steve Vucic, PhD
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
Member of the scientific boards for Merck Serono Australia, Novartis, and Bayer Schering
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
Sanofi-Aventis, speaker honoraria
Editorial Boards:
1.
NONE
Patents:
1.
NONE
Publishing Royalties:
1.
NONE
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
Medical consultant for Merck Serono Australia
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
NONE
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
NONE
Legal Proceedings:
1.
NONE
Thor D. Stein, MD
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
NONE
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
NONE
Editorial Boards:
1.
NONE
Patents:
1.
NONE
Publishing Royalties:
1.
NONE
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
NONE
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
NONE
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
NONE
Legal Proceedings:
1.
NONE
E. Tessa Hedley-Whyte, MD
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
NONE
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
NONE
Editorial Boards:
1.
Human Pathology:Editorial board member current; World Neurosurgery, advisor, editorial board
Patents:
1.
NONE
Publishing Royalties:
1.
NONE
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
NONE
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
NIH/NIA/Mass. Alzheimer’s Disease Research Center, AG P50 AG005134, Coinvestigator Neuropathology Core, 1985 to present.
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
Becton Dickinson: more than 30 years
Legal Proceedings:
1.
NONE
Stephen R. Reddel, PhD
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
Sanofi - Aventis; Baxter
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
Travel support from Novartis & Bayer-Schering; Speaker’s honoraria from Novartis and Sanofi Aventis
Editorial Boards:
1.
NONE
Patents:
1.
NONE
Publishing Royalties:
1.
NONE
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
NONE
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
MDA (USA)
Research Support, Government Entities:
1.
NH&MRC
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
NONE
Legal Proceedings:
1.
NONE
Stephen Tisch, PhD
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
NONE
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
Speaker fees received from Novartis and Boerhinger for educational lectures on Parkinsons disease therapies in 2010 and 2012; Funding for travel/accomodation/conference registration fees received from Novartis to attend Movement Disorders Sociey Meeting in Toronto June 2011
Editorial Boards:
1.
Recently invited to be Lead Guest Editor for Special Edition of the Journal
Patents:
1.
NONE
Publishing Royalties:
1.
NONE
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
NONE
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
NONE
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
NONE
Legal Proceedings:
1.
NONE
Katya Kotschet, MBBS
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
NONE
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
NONE
Editorial Boards:
1.
NONE
Patents:
1.
NONE
Publishing Royalties:
1.
NONE
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
NONE
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
NONE
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
Research grant funding from Brain Foundation
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
Stock options in Global Kinetics Corporation, but has not received any income.
Legal Proceedings:
1.
NONE
Didier Cros, MD
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
NONE
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
NONE
Editorial Boards:
1.
NONE
Patents:
1.
NONE
Publishing Royalties:
1.
Peripheral Neuropathy, Lippincott Williams & Wilkins, 2001
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
Consultant Foldrx (2007-8), study design
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
NONE
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
NONE
Legal Proceedings:
1.
NONE
Matthew C. Kiernan, DSc
From the Sydney Medical School Westmead (S.V.), University of Sydney, Sydney, Australia; Neuroscience Research Australia (S.V., M.C.K.), Sydney, Australia; C.S. Kubik Laboratory for Neuropathology, Department of Pathology (T.D.S., T.H.-W.) and Department of Neurology (D.C.), Massachusetts General Hospital, Harvard Medical School, Boston; Department of Neurology and Molecular Medicine (S.R.R.), Concord Repatriation General Hospital, Concord, Australia; Department of Neurology, St. Vincent's Hospital (S.T.), University of New South Wales, Sydney, Australia; St. Vincent's Hospital (K.K.), Melbourne, Australia; and Prince of Wales Clinical School and University of New South Wales (M.C.K.), Sydney, Australia.
Disclosure
Scientific Advisory Boards:
1.
Non-profit entities:; Australian Brain Foundation: Member, Board of Directors 2001 – present; Chair, Scientific Committee 2008 – present; Vice President, 2008 – present; Motor Neurone Disease Research Institute of Australia: Member, Board of Directors 2004 – present; Australian and New Zealand Association of Neurologists: Member, Board of Directors (Council) 2004 – present; Chair, Scientific and Programme Committee 2008 – present
Gifts:
1.
NONE
Funding for Travel or Speaker Honoraria:
1.
NONE
Editorial Boards:
1.
Editor-in-Chief, Journal of Neurology, Neurosurgery & Psychiatry (2010 - present); Editorial Board, Journal of Neurology, Neurosurgery & Psychiatry (2006 – present); Editorial Board, Journal of Clinical Neuroscience (2004 – present); Associate Editor, Clinical Neurophysiology (2008 – 2010); Editorial Board, Amyotrophic Lateral Sclerosis (2008 – present); Editorial Board, Current Medicinal Chemistry (2008 – present); Editorial Board, British Medical Journal [Case Reports] (2008 – present); Editorial Board, British Medical Journal (2010 – present); Editorial Advisory Board, British Medical Journal Open (2010 – present); Editorial Board, Practical Neurology (2010 – present)
Patents:
1.
NONE
Publishing Royalties:
1.
Kiernan MC (editor). The Motor Neurone Disease Handbook. MJA Books, Australasian Medical Publishing Company, Sydney, 2007, 225 pages.
Employment, Commercial Entity:
1.
NONE
Consultancies:
1.
NONE
Speakers’ Bureaus:
1.
NONE
Other Activities:
1.
NONE
Clinical Procedures or Imaging Studies:
1.
NONE
Research Support, Commercial Entities:
1.
NONE
Research Support, Government Entities:
1.
National Health and Medical Research Council of Australia
Research Support, Academic Entities:
1.
NONE
Research Support, Foundations and Societies:
1.
NONE
Stock/stock Options/board of Directors Compensation:
1.
NONE
License Fee Payments, Technology or Inventions:
1.
NONE
Royalty Payments, Technology or Inventions:
1.
NONE
Stock/stock Options, Research Sponsor:
1.
NONE
Stock/stock Options, Medical Equipment & Materials:
1.
NONE
Legal Proceedings:
1.
NONE

Notes

Correspondence & reprint requests to Dr. Vucic: [email protected]

Author Contributions

S. Vucic recruited patients, performed all studies, performed data analysis, and wrote the manuscript. T. Stein performed autopsy, reported the findings, and edited the manuscript. E.T. Hedley-Whyte performed the autopsy, reported the findings, and edited the manuscript. S. Reddel contributed a patient, assisted with data analysis, and edited the manuscript, providing critical scientific input. S. Tisch contributed a patient, assisted with data analysis, and edited manuscript, providing critical scientific input. K. Kotschet contributed a patient, assisted with data analysis and edited the manuscript, providing critical scientific input. D. Cros provided vital input in the analysis of the neurophysiology, contributed a patient, and edited the manuscript. M. Kiernan provided vital scientific critique, edited the manuscript, and assisted with data analysis.

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